Collaboration between Stef May, and Dax Everritt (Diary of a Disabled Person). You can read Part 1: Stef’s advice here. Part 2: Dax’s Advice: I’ll start with…… Read more “Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 2.”
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Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 1.
Collaboration between Stef May, and Dax Everritt (Diary of a Disabled Person). With COVID19 being a mass disabling event and NHS wait times leading to preventable chronic…… Read more “Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 1.”
Harry Potter & the Book of Bigotry.
I never really liked Harry Potter. This was at least partially due to constantly being compared to buck-teethed, frizzy-haired Hermione Granger, a stereotype of awkward introverts that…… Read more “Harry Potter & the Book of Bigotry.”
Health is a Rollercoaster (Just Gotta Ride It).
Anyone with a chronic illness knows that health can be more variable than weather in the British Summertime; there will be glorious days, there will be gloomy…… Read more “Health is a Rollercoaster (Just Gotta Ride It).”
Revisited: GETting Nowhere.
A lot has changed in the five years since I first created Diary of a Disabled Person, so I decided to take a look back at content…… Read more “Revisited: GETting Nowhere.”
Out With the Old, In With the Same.
Towards the end of October 2021, after months of back and forth, the National Institute for Health and Care Excellence (NICE) finally published the Myalgic Encephalomyelitis (M.E)…… Read more “Out With the Old, In With the Same.”
Falling at the Final Hurdle.
Earlier in the month I wrote about the National Institute for Health and Care Excellence’s review of M.E treatment guidelines, followed a few days later by a…… Read more “Falling at the Final Hurdle.”
Breakthrough.
Over the weekend I published my account of the recent NICE review of treatments offered to M.E patients in the UK. I expressed concern that either NICE…… Read more “Breakthrough.”
The Rise and Fall.
One of the most difficult things about having Myalgic Encephalomyelitis is the way it fluctuates more than a DNA strand by Chernobyl. I can go from feeling…… Read more “The Rise and Fall.”
The Chronic Illness Survival Kit.
With the inevitability of a train crash that you can’t look away from, COVID-19 has left many people feeling symptoms of intense fatigue, pain, & post-exertional malaise…… Read more “The Chronic Illness Survival Kit.”