Diary of a Disabled Person.

In early January 2018 I started my first job. After 5 months of HR dragging their feet with the paperwork I was relieved to finally start work, even if my hours were limited. When I arrived my new employer had even more concern for exasperation with HR as my computer login didn’t work, and the fact that the IT department were inaccessible complicated matters. We asked about incorporating access but were told the cost was too great, which due to all the budget cuts is believable. I finally managed to get onto the computer only to find that one of the programs essential for my role hadn’t been set up properly, so once again IT had to come to the rescue. After this I spent the first few days going through my compulsory training, but there was no job-specific training, so I simply learned from following what my colleagues did. It seemed to work well. These were all just teething issues that settled down as time passed.

In mid-January Diary of a Disabled Person became 1 year old, and a week later I accepted my first ever award for my efforts, The Leibster award. I was gaining confidence in my work and felt ready to expand my horizons.

By mid-February I was developing my new website; I had paid for a web domain and used a template I liked to create what you now see before you, added better menu and search functions, added my social media, and added a donate button. I also decided, after much deliberation, to set up a Twitter account. I was a little reluctant to do so as I had heard so many things about online trolls and generally toxic behaviour towards each other, but I also knew that it would enable me to reach out to a wider audience. However, once I had set up a profile online I realised that my concerns were mostly unfounded, and I was introduced to many new people and opportunities. I began writing accessibility reviews and giving interviews for podcasts and magazines, and I quickly gained a substantial number of loyal followers.

Before I knew it Easter was fast approaching. I had been given more hours at work and was feeling more positive about the role. I also received a work phone, which was a relief as up until that point I had been using my personal phone as my work one, using up the minutes on my contract and meaning that I constantly had to fend off work calls on my days off. I had many understandably frustrated customers when I had to tell them I wasn’t at work that day so couldn’t help, as I didn’t have access to the necessary resources.

Knowing that my hours were increasing allowed me to pull what was, in retrospect, quite a mean April Fool’s prank. Having waxed lyrical about the extra strain put upon me by my increased hours I informed my readers that I would no longer have the energy to write, and that Diary of a Disabled Person was coming to an end. I let them believe this for 4 whole hours before breaking the news that this was a prank. I thought the prank wasn’t particularly convincing but clearly I’m a better liar than I had anticipated, and I still feel a little guilty about the whole scenario. I aimed to ease the upset a week later when I accepted my nomination for a second award, which thankfully seemed to go down well.

Shortly after Easter came the Leeds Digital Festival 2018, something which my office were heavily involved in. I had helped arrange several seminars and workshops all over the city, some of which I got to attend in person, and that was the precise moment when my wheelchair decided to break down. My wheelchair had to be taken to a workshop for testing and repairs, and I was informed that I was lucky to receive a replacement wheelchair for the month I spent without my own, a luxury that was apparently not awarded to most people who were left to levitate if they wanted to leave the house. I was more thankful for the fact that I didn’t have to pay for any of the repairs, which included a brand new set of batteries. I was particularly thankful as the landlord wanted the annual rent up front, on a tighter deadline than the year before, which we could afford but didn’t leave much in my account.

In June things began to deteriorate at work. I would come home in tears almost every night, usually frustrated that I appeared to be making an excessive number of mistakes. Eventually it got so bad they insisted they write instructions down for me, but fortunately it was this that highlighted I had been following instructions without making too many errors, and that the majority of the time the mistakes were in the instructions themselves. However, mutual trust and respect had been shaken enough to create a tensely uncomfortable environment.

It was also in June when I got my first tattoo, a simple piece of calligraphy down my right arm reading “Disability Doesn’t Mean I Can’t”. I was pleasantly surprised to find that the pain wasn’t unbearable, and I had no issues at all with the healing process thanks to some good advice from my boss. Given that they are the only accessible tattoo parlour nearby, even going so far as to bring a tattoo station downstairs for me, I was relieved to get good service; it means I can go back!

In July Jarred graduated from university; I watched from the front row next to my future brother-in-law, and we celebrated by eating together later in our favourite restaurant. Then Jarred, who had been looking for work since finishing his studies a few weeks before, managed to land a job as a care assistant. We both settled into the new routine quite quickly, and things seemed to be going well.

Right at the start of August life dealt me two of the hardest knocks I’ve ever taken a matter of days apart. Firstly, our beloved hamster Tribble managed to escape in the night and hasn’t been seen since. While a hamster may seem a trivial pet to grieve over I was distraught, having lost a loving companion, and I was still struggling not to suddenly burst into tears at random intervals when I lost my job.

They told me their funding had run out and were letting me go, but they were taking on new staff at the time so I’m not sure how much that influenced their decision. I think a disagreement with one of my colleagues, who had told IT that I would go over to see them despite the fact that I had already arranged for them to come to me, had more to do with it.

They tried to ease the blow of losing my job by saying I could transfer to other admin roles within the district, the only problem being that the only ones with regular or substantial hours were based in the inaccessible building. Tired and fed-up, I quit on the spot.

Once again I began job-hunting. The days were drawn-out and seemingly endless, weekends and weekdays merged into one, and I became increasingly depressed. Even accepting more awards taking me to a sum total of 5 did little to cheer me up.

There were a few issues surrounding inaccessible offices, but eventually I found that this time around I had much more luck obtaining interviews due to the work experience I had, so this wasn’t as much of a problem this time round. Less than a month after losing my job I was offered a new one, this time a salaried, full-time role in medical research which my knowledge and skills were much more suited to. I obtained references from my past employer, had my hen do at the local cat café, and bought my wedding dress.

On October 1^st I started my new job, helping to chase-up erroneous or missing data, ensuring that anomalies were explained wherever possible, and producing a mistake-free dataset for the statisticians to work on. I was also involved in some trial management skills, booking meetings and promoting studies to boost recruitment, and fell in love with the varied role. The training was substantial which helped to boost my confidence in my ability to do the job. I was never bored and, because it is based at a university, there were absolutely no qualms about accessibility. My colleagues and superiors are lovely and even offered to guide me through the Access to Work scheme, although fortunately for them I had completed the scheme previously anyway.

The winter months grew colder and the wedding fast approached. I saw a few friends and family as the wedding approached, although most of the visits were fleeting as people were saving money for the actual wedding. Clothes were bought, cakes chosen, and invitations sent out. For obvious reasons I am actually writing this before the wedding takes place on 27^th December, so I cannot tell you how it went. It is strange to think that I write this as Jarred’s fiancé, but will publish this as his wife. Still, I cannot wait to end 2018 and welcome in 2019 on such a high.

Happy new year…