Myalgic Encephalomyelitis (M.E) can have some weird effects on the body, from the painful swelling of lymph nodes to the sensation of bugs crawling on your skin.…… Read more “M.E, Myself and Eye.”
Tag: CFS
Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 2.
Collaboration between Stef May, and Dax Everritt (Diary of a Disabled Person). You can read Part 1: Stef’s advice here. Part 2: Dax’s Advice: I’ll start with…… Read more “Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 2.”
Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 1.
Collaboration between Stef May, and Dax Everritt (Diary of a Disabled Person). With COVID19 being a mass disabling event and NHS wait times leading to preventable chronic…… Read more “Advice I Wish I Had When I First Became Chronically Ill: For the newly chronically ill, from us old timers! Part 1.”
Harry Potter & the Book of Bigotry.
I never really liked Harry Potter. This was at least partially due to constantly being compared to buck-teethed, frizzy-haired Hermione Granger, a stereotype of awkward introverts that…… Read more “Harry Potter & the Book of Bigotry.”
Health is a Rollercoaster (Just Gotta Ride It).
Anyone with a chronic illness knows that health can be more variable than weather in the British Summertime; there will be glorious days, there will be gloomy…… Read more “Health is a Rollercoaster (Just Gotta Ride It).”
Revisited: The Many Theories of M.E.
Parts 1, 2, 3 and 4 of the Revisited series are available by clicking each number! A lot has changed in the five years since I first…… Read more “Revisited: The Many Theories of M.E.”
Revisited: GETting Nowhere.
A lot has changed in the five years since I first created Diary of a Disabled Person, so I decided to take a look back at content…… Read more “Revisited: GETting Nowhere.”
Out With the Old, In With the Same.
Towards the end of October 2021, after months of back and forth, the National Institute for Health and Care Excellence (NICE) finally published the Myalgic Encephalomyelitis (M.E)…… Read more “Out With the Old, In With the Same.”
Falling at the Final Hurdle.
Earlier in the month I wrote about the National Institute for Health and Care Excellence’s review of M.E treatment guidelines, followed a few days later by a…… Read more “Falling at the Final Hurdle.”
Breakthrough.
Over the weekend I published my account of the recent NICE review of treatments offered to M.E patients in the UK. I expressed concern that either NICE…… Read more “Breakthrough.”