Category: Uncategorized

It’s M.E Awareness Week 2018!

You’ve seen the first blog post of M.E Awareness Week yesterday, about how bad M.E can get. You’ll get to see a more humourous blog post next Sunday, all about the ridiculous theories I have encountered concerning the cause and treatment of M.E.

What else am I doing for M.E Awareness Week 2018?

Donate

That’s 25% of ALL donations, not just profit. I should also clarify that I will be donating 25% of the money donated BEFORE PayPal take their cut. If you donate £10, $2.50 goes to the M.E Assocation. Click on the donate tab in the menu to proceed!

Find out more about the M.E Association here: http://www.meassociation.org.uk/

Q&A

You can send me your questions via social media, through social media private messaging services, or by going to the contact tab in the menu above. I am willing to answer anything about living with M.E, so submit your questions! The video will be posted on here on Saturday!

M.E Awareness Week.

MEAW Summary

M.E Awareness Week 2018 runs from 7th to 13th May – here’s what you can look forward to on Diary of a Disabled Person:

25% of all donations received during this period will be in turn donated to the M.E Association, a charity supporting sufferers of the condition.

6th May; How bad can M.E really get? Find out in special blog post “The Worst Days”.

10th May; Q&A Session. Submit your questions about living with M.E on the “contact” page by 10th May, and I will try to answer as many as possible in a short video.

13th May; What are the most ridiculous theories about M.E? Find out in “The Many Theories of M.E”.

MEAW Details.jpg

 

 

Subscribe!

If you don’t have a WordPress account yourself, you can now sign up to receive email notifications every time new content is released.

On the right hand side of the page (or at the bottom on phones), beneath the follow button for those with WordPress accounts, you will find something that looks like this:

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All you have to do is enter your email address, and you will never miss a blog post again!

Make Your Voice Heard!

If ever you needed proof that I care about all disabilities and not just wheelchairs, then here it is:

The company I work for helps to develop and implement digital health technology in the NHS, making healthcare easier to reach and more accessible for everyone. One of our current projects is concerned with the accessibility of GP’s surgeries to those who are hard of hearing, or partially sighted/blind. As part of this project, we will be running a workshop on Monday 14th May in Huddersfield, West Yorkshire (more details below), and I am one of the members of staff who will be present on the day. I can personally assure you that the the entire team is going to great lengths to ensure that everyone’s needs are met.

Our project is 1 of 20 across the country being sponsored by NHS Digital, and is jointly run with the Good Things Foundation. As well as supporting the hard of hearing and partially sighted/blind to have a better GP experience, we also aim to work with GP staff and anyone else who wishes to be a ‘Digital Champion’, sharing our combined knowledge to improve pathways through health services wherever we can.

At the workshop you can explore accessibility technology and have an opportunity to tell us what needs to change to make it easier for you to visit your GP, as well as getting to see the strange, wheelchair-shaped person behind Diary of a Disabled Person in action.

And if that’s not enough to interest you, then this should do the trick: FREE FOOD.

14.05 Workshop Details.

 

The Lovely Blog Award.

The Lovely Blog Award is given by bloggers to other bloggers whose content is well-written and insightful, often inspiring others to put pen to paper (or in my case finger to keyboard) themselves. In order to accept this award, the nominee must thank the blogger who nominated them, give seven facts about themselves, and nominate seven other bloggers for the award.

Accepting the Award:

After unexpectedly receiving a nomination for the Leibster Award (see acceptance post here: https://diaryofadisabledperson.blog/2018/01/21/the-leibster-award/), I was perhaps even more surprised to be nominated for the Lovely Blog Award. I would like to thank Chamomile Midnight Rambles for their nomination, and would recommend that you give their blog a visit here: https://chamomilemidnightrambles.wordpress.com/.

Seven Facts About Me:

  1. My favourite style of drumming, despite my tendency to listen to rock and metal music, was actually samba music. Although fast and complex, it was also extremely good fun, particularly as the drums take centre stage for this style of music. Beat it
  2. I have a (semi-secret) soft spot for music by Rihanna, Lady Gaga, and Katy Perry.
  3. As a teenager I once had black-coloured braces, which actually looked far better than that sounds.
  4. I have never had driving lessons, and cannot drive at all.
  5. I currently work in NHS administration, in a small department that works on digital health and technology in healthcare.
  6. Our office has a dog called Bi-Bi!
  7. I am getting married at the end of December 2018.

My Nominees:

The Disability Diaries: https://disabilitydiaries.com/

Seeing M.E in Reality: https://seeingmeinreality.com/

Wheelescapades: https://wheelescapades.com/

KimiBlack: https://kimiblack.wordpress.com/

A Backpack, A Chair, and A Beard: https://waywardwheeler.wordpress.com/

Roxy Moto: https://roxymoto.wordpress.com/

HeyIt’sLeaa: https://heyitsleaa.co.uk/

Announcement.

Dear all,

Those of you who follow me on social media (Facebook: @diaryofadisabledperson, Twitter: @WheelsofSteer), or who know me in person, will know that this week I was offered more hours at work. With the current dismal financial state of affairs, and a forecast even worse, the increased wage was too good to turn down, and so I quickly accepted. The only downside of the additional hours, and one that I can no longer ignore, is that I can expect a decline in my health.

The decrease in the time I can spend on my writing, and the increased need to rest and recouporate will naturally impact my ability to run Diary of a Disabled Person. The undeniable truth of the matter is that writing, editing, recording, illustrating, and publishing my content, alongside managing two social media accounts, takes a lot of time and energy. This is time and energy I will no longer have.

Therefore I have come to the decision to end this blog. The content will remain available, and I will maintain my social media accounts and continue advocating for disabled rights, but new content will no longer be published.

I am terribly sorry to have to end this so suddenly, and I want to thank you all for your continued support.

It is with regret, then, that I write these final words for you to read.

Wishing you all the best,

Emma Steer.