Smoke on the Pavements.

Despite all the public health campaigns and education programs to discourage cigarette smoking it’s still a relatively common problem, particularly as giving up the habit is so difficult. Even with the invention of nicotine patches, chewing gum, e-cigarettes, and hipsters (we get it, you vape) the process of quitting is nothing short of arduous. While some people get riled by those who smoke because it is a choice they vehemently disagree with I try to have a little more patience as these situations are rarely as clear-cut as they seem. However there is one general trait that is relatively common among smokers that does annoy me; when smoking in public they rarely show consideration to the rest of us using the city streets at the same time.

When the UK government completely banned the practice of smoking cigarettes indoors in public places they failed to consider where smokers could go outside to smoke. It wouldn’t be a UK law if something wasn’t drastically overlooked. So naturally the smokers gather just outside of the door, especially in the winter, and to enter the building you are forced to pass through a thick haze of carcinogenic smoke. This is a problem for everyone, but for anyone disabled we have the additional challenge of navigating around a blocked pavement or doorway just to continue our business.

Breathing difficulties are also a common issue for those with chronic illnesses. I myself am asthmatic and when visiting the doctor we will always be asked to avoid cigarette smoke where possible. Given that to enter or exit a public building, doctor’s surgery included, we have to pass through the crowd of smokers outside this is nigh on impossible.

There is one problem bigger than all of the above that is down-right dangerous for wheelchair users, dwarves, and children alike (even more dangerous than the risk of lung cancer). When not taking a drag on a cigarette most people let it dangle from the end of their relaxed arm which just so happens to be right in our eye-line. I have lost count of the times I have only just avoided a cigarette burn on my face and I know that many parents say the same of their young children. On one occasion where the smoker was crouched against a wall on a narrow and busy pavement, the cigarette actually touched my leg and had I not been wearing tights I would have been burned. Not once in any of these instances has the smoker in question apologised or even noticed that they nearly set fire to someone, which you would think was fairly obvious. In fact many will look over their shoulder, see someone behind them, and continue to do it anyway. It shocks and appalls me that people will be so negligent when holding a stick which is literally on fire and I wish that smokers would be respectful to the rest of the public and their right not to get set on fire.

Of course when it is suggested that smokers should have to walk five metres further to a designated smoking shelter, all hell breaks loose…

Able to Remember.

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There are a plethora of reasons some people use as a means to discriminate against others, such as gender, sexuality, religion, race, and of course, disability. Over the past few years it was realised that if each minority facing a particular type discrimination banded together, forming a much larger group tackling all kinds of discrimination, they would have more power and influence due to sheer numbers. As such it is now very common to see people on social media listing all the types of discrimination that they oppose, but almost invariably there is one type of discrimination absent; ableism.

I do not for one second think that ableism is omitted intentionally, simply that it is forgotten or overlooked. Many people assume that the law protects the disabled against discrimination, but the law is all but meaningless when no one bothers to implement it. Others believe that ableism is a relic of the past, or don’t see why the misuse of special facilities or the obstruction of access routes is, in fact, ableism. Others simply forget that ableism exists at all.

With ableism so easily forgotten it is no surprise that issues such as equal access to transport, particularly on trains and aeroplanes, are still such a significant problem in 2018, nor is it surprising that a very large proportion of public spaces and buildings lack wheelchair access completely. Of course, when most courts lack proper wheelchair access including into the witness box, it’s hardly as if suing someone for discrimination is feasible. Therefore the problems go on unchecked and forgotten.

I am convinced that the first stage in the fight against ableism is simply to raise awareness. Over the past few years I have met lots of new people through university and work, and nearly all of them have said that being around me and observing my daily struggles has opened their eyes to the prevalence of ableism in day-to-day life. Many of these same people have told that me that their habits would change; they would be more reluctant to use disabled facilities unless they really had to, and that they would see cars parked on pavements and get angry without me even being there.

Anyone on Twitter may have seen the #JustAskDontGrab campaign led by fellow blogger Dr Amy Kavanagh, raising awareness of how to help disabled people without invading their personal space or inadvertently causing harm. The campaign predominantly focuses on anecdotes and personal experiences to highlight the issue, and uses the Twitter slogan for the benefit of computer algorithms. Seeing the impact Amy has made started me thinking; what if I could do the same to ensure that ableism is included in the fight against discrimination?

The trickiest part for me was coming up with a social media friendly signature, particularly as I didn’t want something that sounded aggressive or accusatory as I firmly support the fight against all types of discrimination too. Indeed when I finally had my eureka moment on my evening commute, I was so engrossed in thought that I almost collided with a lamp post. Thus #AbleToRemember was born. Now all I needed was a launch date, and I could think of no better than Remembrance Sunday itself. While the soldiers who died in the various wars are honoured by this session, those who became disabled in the war are often overlooked, demonstrating my point perfectly.

Whenever I spot ableism being omitted from a list of all other types of discrimination, I will be sharing it alongside #AbleToRemember, and I want others to do the same. I’m not pointing the finger or being antagonistic; I just want to ableism to become as unpalatable as any other type of discrimination.

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Attack of the Brain Fog.

Let’s be honest, we’ve all had plenty of cringe-inducing moments that keep us awake at night when you most need the sleep. Much as I would like to say otherwise I am no different in this respect. However where I differ from the norm is that I can blame these horrendous instances on my disability, or more specifically the so-called “brain fog” that plagues people with various chronic illnesses.

As a member of a small team in the workplace I grew accustomed to the little quirks and idiosyncrasies that would make us the perfect subject for a sitcom, were it not for the fact that this idea has been flogged one too many times. Organising a table tennis tournament for one lunch break has been one of my least serious assignments, but being asked to arrange a “cheese day” takes the biscuit (because nothing goes better with cheese than a nice selection of savoury biscuits). For cheese day we are all required to fetch different cheeses to work, and during the team meeting we’ll all enjoy samples of them all, which for an office is an undeniably weird thing to see displayed on the calendar.

Imagine my embarrassment then, when I realise that I had not sent the email invitation to my colleague, but instead had sent it to someone else of the same name in my address book. Fortunately he had an excellent sense of humour about it and is now considering implementing a cheese day in his own office. So if cheese day goes viral, you know who to blame; parents who give their children common names. Like Emma (thanks mum and dad).

I am particularly afflicted with brain fog first thing in a morning, which makes taking my morning medication rather interesting. The most common problem arises with a tablet I take both in the morning and at night in different doses. If I get them the wrong way around, taking the larger dose in the morning rather than the evening, I will spend the rest of the day in a drowsy stupor. This having occurred on a work morning means that technically I have been to work while high and got away with it, a claim that some would use the term “badass” to describe.

Perhaps more worrying was the occasion when I tried to inhale my nasal spray through my mouth, which was a somewhat interesting experience.

While living in halls of residence at university the fire alarm being set off at unthinkable hours by drunk people trying to use toasters was a very regular occurrence. When the fire alarm exploded into life at 2 am in my first week away from my parents I wondered why my dad hadn’t switched the burglar alarm off, which would occasionally go off at night when a spider crawled across the sensor (and never when someone was trying to break in). This is despite the fact that the fire alarm sounded completely different, was much louder, and included a red flashing light on the ceiling for those who couldn’t hear the alarm. Needless to say I was one of the last to arrive at the convening point as we were evacuated.

There is also the story of how this photo came to exist:

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Discussing brain fog with a few online friends an accidental misreading lead to brain fog being substituted with brain frog in all of our messages. Given that for some strange reason I have a plushie toy frog (I still have the inventively named Croaky) it didn’t take long before dad took this photo for me. Selfies were harder back then.

By the way, if this becomes a meme the extra publicity is much appreciated.

The Virtual Cure.

Like most introverted geeks I’m a big fan of video games, and spend so much time playing them that I’m considering replacing my wheelchair control panel with a game controller. While I’m fond of some role-playing games my favourites tend to focus on either driving skills or combat, perhaps because I’m a weird kind of adrenaline junky who doesn’t like rollercoasters but still wants thrills.

There was a time when I wasn’t as comfortable playing video games as I am now, partly because of the stigma against female gamers that was prominent until relatively recently. It is only in the past year or so that I have come to describe myself as an avid, if casual, gamer. However in that time I have developed a deep love of video games that I refuse to be ashamed of, either for being a woman or being disabled. Nor do I take my gaming habits too seriously; they are what I do when I want a break and maybe a little stress relief, and are particularly fun when paired with a glass of wine (as is the case with a great many things).

A good video game is as immersive as an Agatha Christie novel and triggers genuine emotions as the story unfolds. Admittedly the emotions from Doom tend to be more of the “DIE YOU —— ——-“ type, but Horizon: Zero Dawn is a little more nuanced in between beating up giant robots with a spear. A game that can invest you in the setting, characters, and stories so beautifully feels real as you play. It doesn’t feel like I’m pressing buttons to move a digital image; it feels like I’m there reacting to the situation as it all happens. This is undeniably exhilarating for anyone, but for me it means I can experience the thrills of vigorous activity while only getting a cramp in my thumb. If a game is good enough it feels as if I can run and jump and do crazy somersaults that I couldn’t even manage pre-disability, let alone now. Besides, everyone deserves a little fun now and then.

At this point I probably sound like some over-invested nerd and perhaps to some extent I am, but I’m not exaggerating when I say that for a few all-too-short hours I am virtually cured. If for the rest of my life this is my only taste of having a fully-functional and not-painful body then I can live with that. I’m not about to start a gaming channel on YouTube, partly because I would only embarrass myself with my rather comical ability to fall off a cliff at the worst possible time, every single time.

Everybody has their favourite recreational pass-time and I am no different, disabled or otherwise. Sometimes we have a tendency to overlook the importance of recreation and how it can benefit us in unexpected ways. Now if you’ll excuse me, the PlayStation calls…

Diary of a Disabled Person Needs YOU.

It’s that time of year again; the run-up to Christmas and New Year is picking up the pace. As such, it’s time for me to plan and write Christmas and New Year Specials, and while I’ve already got a plan for the New Year Special, I’m struggling to differentiate this year’s Christmas edition from last years. That is where YOU come in.

I want to know what Christmas-themed topics you want to read about. All suggestions are welcome provided they relate to the festive season and in some way relate to disability. Short story ideas are equally welcome. It doesn’t matter how vague or tenuous the suggestion is; all ideas will be considered! If your idea serves as the inspiration for the Christmas post, I will give you a shout-out both on here and on social media if you would like that.

Let me know what you think in the comments section, or alternatively you can send me an email via the contact tab on the main menu.  Monetary bribes are 100% accepted on the donate tab, also on the main menu.

I’m genuinely interested to see what you all come up with!

Accessible Ethics.

It takes a special kind of idiocy to deny that being accessible is right, but WHY is it right? I could never explain this eloquently so I’ve roped in a little assistance from my fiance, who just so happens to have a philosophy degree.
PS: These should be useful for shutting people up who hinder accessibility and then defend their actions.

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