To Be Or Not To Be (Disabled).

At the time of writing I’m reading the sci-fi dystopia novel Altered Carbon by Richard Morgan. Originally I saw the Netflix adaptation, & enjoyed it so much I couldn’t help picking up the book it was based on. I certainly haven’t been disappointed.

For those unfamiliar with the story, it is set in a future where people can be downloaded onto a USB-drive called a stack, which can be inserted into a new body. This essentially makes people immortal unless the stack is damaged, but unsurprisingly due to the high cost of the procedure, only the higher classes have the privilege of being able to jump from body-to-body multiple times, never having to worry about the Grim Reaper.

While the story is an action-packed thriller involving the “murder” of a rich man who is revived in a clone of his old body, it also raises many unanswerable, philosophical questions about identity, gender, sexuality, crime, & morality. The relationship between the protagonist & one of his associates is somewhat complicated after he inherits the body of her old boyfriend, all the while fighting for his own girlfriend to be revived in a new body too.

One thing that isn’t touched upon in the story, however, is how this system would affect disability. It is understandable that many people would not choose to be revived in a disabled body, but does that mean disabled bodies would simply be tossed aside like trash? If the body you were born in becomes disabled, would you choose to have your stack moved to a functional body?

Quite frankly if I had the option to have myself uploaded into a non-disabled body, I wouldn’t even need to think about it; I would do it in a heartbeat. While using a wheelchair is often complicated & inconvenient, it isn’t this that makes me wish I wasn’t disabled. The sickness itself is the problem for me. There isn’t much I wouldn’t give not to be constantly exhausted, constantly in pain, & often having to fight nausea, dizziness, itching skin & eyes, & the inability to concentrate. Even as I sit writing this my eyelids are sinking & my head feels heavy.

I can’t help but wonder how I would feel if for some reason I couldn’t walk, but was otherwise perfectly healthy. Would I still want to swap bodies? Disability is an integral part of my identity & has given me as much as it has taken, but I still think I’d want to change bodies. If nothing else, fending off the constant questions as to why I hadn’t chosen to change bodies would be reason enough. Besides, given that many businesses manage to make excuses for their inaccessibility now, in a world where disability could be fixed by switching bodies, there wouldn’t be a hope in hell of equality.

Then it boils down to the really tricky question; is it ableist to cast aside disabled bodies like trash? If ableism is defined by prejudice against the disabled, then logically it would seem that this is ableist. Yet I believe that I’m not the only disabled person who would choose to do exactly that, which would make us ableist against ourselves.

At the end of the day this future is highly unlikely to happen, as the number of problems caused by body-switching immortality would probably lead most governments to ban it outright if it ever became a possibility in the first place. It is somewhat useless to debate these questions when they will never arise, especially when we could be putting our time & energy into solving current issues. Still, it is undeniably interesting to think about these questions & how we would choose to answer them

Diary of a Disabled Person: Collector’s Edition.

Ever since starting this blog in January 2017 I’ve been asked about writing a book countless times. I have decided that now is the time to announce that I am giving serious thought to doing just that, and using my blog as a template for a book.

This won’t be happening any time soon; I will need to edit and reorder blog posts to suit the book format, and I will also be adding some exclusive content which will take some time to put together. I am then going to need an editor or two to proof-read and validate my work – I have a couple of people in mind and they will hear from me shortly.

I also need to register as self-employed and look at how, once written and edited, I should go about publishing the book. Chances are I will opt to self-publish, and while I would love to have the book printed, e-books may be my only viable option financially.

I can only ask that you are patient with me as this is a monumental undertaking, but I think the hard work will pay off. Any financial support that can be offered to help bring this project into existence would be very much appreciated.

In the meantime, please keep reading my blog!