On a recent visit to the GP I discovered that the lift into the surgery now needs someone to close the door behind me once I’m in the lift. This was a rather unfortunate discovery as I was visiting the doctor alone, as I usually do. After waiting in the lobby area for a few minutes anxiously watching the clock ticking ever closer towards my appointment, a receptionist appeared at the top of the stairs and came to my rescue. While I did say thank you for the help I received, I also challenged her about this turn of events. Her response was that I should have someone with me next time or leave enough time for someone to pass by; the idea that I might want to be independent like every other adult using that surgery was incomprehensible.
This is not an isolated case by any measure; many places have small, rickety platform lifts that require a specific key held by only one member of staff that you can’t contact because you’re at the bottom of the steps while they’re in an office upstairs. Similarly whenever the accessible entrance to work is either broken or locked I have to wait for the receptionist behind the desk to finish gossiping with her colleague, search for a key they never have to hand, and fold back the revolving door allowing me to enter my own workplace. This process then has to be repeated on the way out; I cannot enter and leave the building at my leisure as literally every other person can. Given that the revolving door is always unlocked with a steady stream of people entering and exiting the building, I asked that it be left folded back when the accessible entrance wasn’t in use. Apparently, this was a security risk despite the fact that this would save everyone a lot of time and effort. I was also told that being the only wheelchair user in the building essentially made folding back the door an inconvenience.
It seems like wherever I go the idea that I want to be independent is shocking and impossible. While I always appreciate people asking me if I need help, I often encounter people who just barge in to start helping without asking first. On one occasion this even lead to a scalding hot coffee getting poured directly into my lap which was incredibly painful and somehow it was my fault for trying to be independent. In other cases I have been asked if I need help and when I have politely declined, the “help” has been provided anyway. What I want or need doesn’t matter; if someone judges that I need help they’re opinion overrides my own. In addition I have received torrents of verbal abuse for trying to be independent, being called arrogant, ungrateful, and much more besides.
This isn’t a new problem. For the past few millennia women have had to fight relentlessly to be permitted to do things independently of men, and now disabled people face exactly the same problem. Sometimes I don’t know if my desire to be independent is shocking because I am not a man, use a wheelchair, or a combination of the two.
Independence is not something that should only be encouraged in able-bodied men. The desire to be independent is not a sin; it should be encouraged. Allow me to fail. Allow me to get hurt. Allow me to get up (figuratively at least) and do it all over again until I get it right. Look at the top of this page. Look at my arm. “Disability doesn’t mean I can’t”.